In the age of instant global communication, multi-center studies are becoming increasingly common as technology helps us address the inherent difficulties common to non-centralized data collection and coordination tasks. The HSRC team has the experience and technical expertise to act as your data coordination center for multi-center studies. This includes experienced personnel such as programmers, data managers and project managers, as well as current technology such as comprehensive communication, online assessment, and database tools. HSRC can provide data entry and management tools for participating centers as well as training in the use of these tools, and can coordinate and track incoming data and provide quality control and feedback to individual centers as required. Web-based, comprehensive reports are available for individual centers or the entire project.
Data Collection Technologies
HSRC has developed the Health Outcomes Management System (HOMS) to securely track and report health outcomes data. In addition to providing various reports for program improvement, it acts as a resource for clinicians to monitor individual client progress.
Housed at the San Diego Supercomputer Center and supported by our expert HSRC-based help desk, HOMS is equipped with a full-scale user management system to ensure secure data separation on an individual, clinical, or administrative level.
HOMS provides users a customizable dynamic experience to meet desired functionality through user-friendly interfaces. This includes the ability to customize input forms with automatic validation for data collection tasks, and obtain a variety of reports of individual and program level data. HOMS can also merge and process data from other medical information system, enabling powerful and meaningful analyses.
HSRC has a full-capability call-center where we have conducted thousands of interviews using customizable Computer-Aided Telephone Interviewing software. A powerful call-tracking system lets surveyors know who needs to be called and when, and reports to the mailing system when incentives, thank-you cards, or reminders need to be printed and mailed following a phone session. Our call-projects have included interviews related to quality of life, medication adherence and side-effects, adverse event reporting, health behaviors, patient reported outcomes, tobacco exposure and many others.
Interactive voice response (IVR) represents a cutting edge technique for collecting data at almost any time and place with a minimum amount of intrusion. Participants in a study using IVR are called on their cell or home phones, and are then asked study questions via an automated electronic ‘surveyor.’ Responses to questions can be verbal, or through the use of the phone key-pad.
Internet Adaptive Surveying
Administering surveys via the Internet has fast become one of the most popular and cost-efficient means of collecting data. It has multiple advantages over traditional paper and pencil survey methods such as convenience, flexibility, cost effectiveness, control, and reliability. Our Web-based surveying platform can be programmed for logic-based surveys that automatically administer conditional questions and follow complex skip patterns. This can ensure that all relevant questions are displayed, and that the minimum number of questions is administered in order to provide complete data for each subject.
Alternative Document Transfer
Often a fax or email is the best way to get information from clinical sites to a study center. We can design forms and HTML email layouts that enable researchers to send and receive data collection tools via fax or email. Faxable forms are designed to be quickly and easily scanned or entered into a study database. Email forms have the capability of allowing respondents to include their responses in the reply to a secure email, which is automatically entered into a database.